Title : Care course assessment nationwide exhaustive study: example of effectiveness assessment of neuro degenerative disease rehabilitation in France
Care course improves interprofessional coordination, care quality and decreases costs. Système National des Données de Santé (SNDS), a medical administrative big data base, allows us to rebuild and study care course for hospital care and home care. We will take the example of rehabilitation care of neurodegenerative disease (Parkinson’s disease for this presentation). Evolutive and incurable characteristic of these disease simplifies their study. Furthermore, their different evolutions, medical care and life expectancy allow us to compare and to study them on different situations. Moreover, the rehabilitation effectiveness on these disease are demonstrated in clinicals studies but not in pragmatic nationwide exhaustive study. The main objective of this trial is to study effectiveness of real rehabilitation care course of neurodegenerative disease. The secondary objectives are to define care course’s evaluation standards and to study the protective character of rehabilitation on the handicap evolution and the healthcare consumption.
Firstly, we are making a systematic literature review that defines precisely the diseases’ care courses and their evaluation standards (25 articles on 38,473). Secondly, we will make and epidemiologic study on a retrospective cohort from a generalist sample of SNDS beneficiaries (CIM-10 code, beneficiary of long disease’s program, drugs tracers). It will describe nationwide exhaustive population, by measuring the diseases’ frequency to measure diseases’, quantity, quality and frequency of healthcare consumption. Finally, we will rebuild the patients’ care course and will study the rehabilitation influences factors on the handicap level, survival indicators and healthcare consumption.
This nationwide exhaustive study will allow to examine impact on patients with Parkinson disease rehabilitation care course and its burden of health system.On this presentation we will present the context, methodology to build the care pathway of Parkinson’s disease from big data and early results.